Our favorite hacker, director, and friend is sick in the hospital. Here is info for his family and friends, reporting mostly-live from his hospital room.
If you’re here, you probably know me. I created this Tumblr to post an explanation to friends and family about this whole PNH situation.
The short, short version
I recently got sick, and in typical Matt Lewis fashion, I couldn’t just get “normal sick” - I had to get an extremely rare (~12,000…
Matt was discharged from the hospital last night. This is very good news, but he still has a long road to recovery ahead of him.
The diagnosis on his lung is still inconclusive. The current theory is that he may have had a COPS/BOOP infection that has since been defeated but caused damage to his lung that will take time to heal. Additional imaging and tests will be completed over the next couple of months to keep an eye on it.
So what’s next for Matt?
In the next week he’ll be:
In the next month he’ll be:
In the next 2 months he’ll be:
Even though he’s out of the hospital, he still needs our help. Right now he has the same low energy level he had while in the hospital, except he’s at home with no nurses to help him out. Continued visits and support from family and friends are going to be a very important part of his recovery.
Expect another update Monday or Tuesday after the PNH expert lets us know what he can expect as the treatment starts.
The doctors came in with some great news today; the material in Matt’s lungs is not cancerous, and no further surgery is needed. Tomorrow every pulmonary doctor in the hospital will be coming together to discuss Matt’s case. They have said he’s most likely going to be able to go home within a week.
Preliminary results on the lung biopsy came back, and no tumor cells were found, so it mostly likely NOT cancer which is good news. They are still waiting for stains to come back on various infection/inflammation causes. There may be an update on that tomorrow.
He’s feeling much better, and has been able to sleep most of the day. Tomorrow is looking like a good day for visitors.
Matt is still recovering from Thursday’s procedure. He does not want visitors until he’s feeling better as he is trying to sleep as much as possible.
The docs came by this morning, and were upbeat about having a diagnosis based on the tissue removed during the surgery.
There is a small chance of getting a preliminary diagnosis this afternoon, but if that doesn’t happen, then it’s likely we won’t know anything more until after the weekend.
Matt is sleeping a lot today while he recovers so he’s requested that no visitors stop by today.
He’s out of surgery and back in his room. Doctors will check out the biopsy and use it to figure out what’s wrong.
